World Hemophilia Day
It is an International observance held annually on April 17 by the World Federation of Hemophilia. It is an awareness day for Hemophilia and other bleeding disorders, which also serves to raise funds and attract volunteers for the WFH. It was started in 1989. April 17 was chosen in honor of Frank Schnabel, the founder of The World Federation of Hemophilia.
Themes of World Hemophilia Day
2016: Treatment for All
The vision of All
2015: Building a family of support
2014: Speak Out. Create Change
2013: 50 years of advancing treatment for all
2012: Close the Gap
2011: Be inspired, Get involved in Treatment for All
2010: The many Faces of Bleeding Disorders - United to Achieve Treatment for All
2009: Together, We Care
2008:Count me In
2007: Improve your Life!
Frank Schnabel
A Montreal businessman born with severe Hemophilia A.He established The World Federation of Hemophilia (WFH) at Montreal in 1963. His vision was to improve treatment and care for " the hundreds of thousands of hemophiliacs" worldwide through a new International organization.
From a base of six national Hemophilia Societies, the Federation grew rapidly. It held World Congress every two years and created a global network of healthcare providers,national Hemophilia associations,people with Hemophilia and their families. At the 1964 WFH Congress in Amsterdam, the structure of the new organization was defined with a constitution and an executive board.
It reached a turning point when the World Health Organization acknowledged the Federation's growing international reputation and established official relation. The two bodies began working on joint projects.
In 1982, AIDS hit the Hemophilia community. Connection of HIV infection in hemophilia patients and plasma derived treatment concentrates was presented in the Stockholm World Congress by Dr.Bruce Eratt. AIDS contracted from HIV-contaminated treatment products swept through the Hemophilia community.
Frank Schnabel was among the victims. He passed away in 1987. Until the end, he reaffirmed his vision with the words," We are going to emerge victorious "
On the 5Oth anniversary of WFH, a video was released showing moments from the life of Frank Schnabel.
The Journey Begins : https://www.youtube.com/watch?v=qqYbNeH4bOk&feature=youtu.be
International Frank Schnabel Volunteer Award
Established in 2004 in honor of Frank Schnabel,it is given to an individual with hemophilia, an inherited bleeding disorder,or to a family member, who has contributed significantly in furthering the mission and goals of the WFH. It is given every two years of Congress.
Past recipients
2004 - Ashok Verma
Hemophilia Federation India
2006 - Yuri Zhulyov
Russian Hemophilia Society
2008 - Jean-Michel Bouchez
Association Française des Hémophiles
2010 - Antonio Luque de Garrido
Venezuelan Association of Hemophilia (AVH)
2012 - Martha Patricia Monteros Rincön
Federacion de Hemofilia de LA Republica Mexicana
2014 - David Page
Canadian Hemophilia Society
Brian O' Mahony
Irish Hemophilia Society
Light it up Red!
Each year, new landmarks and monuments are added to the list of WFH partners who support World Hemophilia Day by changing their lighting red on April 17
If there is a landmark near you, contact them to see if it can be lit red on April 17.
If not, just turn your lights red and participate at home.
Light it up red.
It is an International observance held annually on April 17 by the World Federation of Hemophilia. It is an awareness day for Hemophilia and other bleeding disorders, which also serves to raise funds and attract volunteers for the WFH. It was started in 1989. April 17 was chosen in honor of Frank Schnabel, the founder of The World Federation of Hemophilia.
Themes of World Hemophilia Day
2016: Treatment for All
The vision of All
2015: Building a family of support
2014: Speak Out. Create Change
2013: 50 years of advancing treatment for all
2012: Close the Gap
2011: Be inspired, Get involved in Treatment for All
2010: The many Faces of Bleeding Disorders - United to Achieve Treatment for All
2009: Together, We Care
2008:Count me In
2007: Improve your Life!
Frank Schnabel
A Montreal businessman born with severe Hemophilia A.He established The World Federation of Hemophilia (WFH) at Montreal in 1963. His vision was to improve treatment and care for " the hundreds of thousands of hemophiliacs" worldwide through a new International organization.
From a base of six national Hemophilia Societies, the Federation grew rapidly. It held World Congress every two years and created a global network of healthcare providers,national Hemophilia associations,people with Hemophilia and their families. At the 1964 WFH Congress in Amsterdam, the structure of the new organization was defined with a constitution and an executive board.It reached a turning point when the World Health Organization acknowledged the Federation's growing international reputation and established official relation. The two bodies began working on joint projects.
In 1982, AIDS hit the Hemophilia community. Connection of HIV infection in hemophilia patients and plasma derived treatment concentrates was presented in the Stockholm World Congress by Dr.Bruce Eratt. AIDS contracted from HIV-contaminated treatment products swept through the Hemophilia community.
Frank Schnabel was among the victims. He passed away in 1987. Until the end, he reaffirmed his vision with the words," We are going to emerge victorious "
On the 5Oth anniversary of WFH, a video was released showing moments from the life of Frank Schnabel.
The Journey Begins : https://www.youtube.com/watch?v=qqYbNeH4bOk&feature=youtu.be
International Frank Schnabel Volunteer Award
Established in 2004 in honor of Frank Schnabel,it is given to an individual with hemophilia, an inherited bleeding disorder,or to a family member, who has contributed significantly in furthering the mission and goals of the WFH. It is given every two years of Congress.
Past recipients
2004 - Ashok Verma
Hemophilia Federation India
2006 - Yuri Zhulyov
Russian Hemophilia Society
2008 - Jean-Michel Bouchez
Association Française des Hémophiles
2010 - Antonio Luque de Garrido
Venezuelan Association of Hemophilia (AVH)
2012 - Martha Patricia Monteros Rincön
Federacion de Hemofilia de LA Republica Mexicana
2014 - David Page
Canadian Hemophilia Society
Brian O' Mahony
Irish Hemophilia Society
Light it up Red!
Each year, new landmarks and monuments are added to the list of WFH partners who support World Hemophilia Day by changing their lighting red on April 17
If there is a landmark near you, contact them to see if it can be lit red on April 17.
If not, just turn your lights red and participate at home.
Light it up red.
----Hemant Naidu Pulijala , Dr.Anupama Pattiyeri
&Team RedLegacy !
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